A study on Australians and their views on involvement in health and medical research show that more than 60% of Australians believe research should be informed by community views and would like their voices heard.

A suite of materials in multiple languages, now openly available, has been developed to enable better understanding of genetics and genomics among Australia’s culturally and linguistically diverse communities.

A new Australian Genomics study centred on Tasmania sheds light on the diagnostic pathways for rare diseases in regional Australia and recommends actions to overcome some of the barriers, including the establishment of a Rare Care Centre.

The Science Within Us program by GSNV addresses the need for current, evidence-based genomic information in schools by providing comprehensive, age-appropriate genomics education for students aged 10 to 18.

Involve Australia asks funders to require community involvement in all grant opportunities in recently published recommendations for health and medical research funders and institutes.

How do you measure the value of a genomic test? It depends who you are, of course. While providing a diagnosis might be paramount for a patient, for a clinician it might be managing the condition. And for a government department it might be cost savings. 

More than 1000 submissions have been made to the Federal Government’s review of laws around the use of consumers’ genetic test results by life insurance companies. 

Australian Genomics developed a report for the Medical Research Future Fund, detailing priorities for pharmacogenomics research going forward.

A major study into the meaningful involvement of community members in genomic research has culminated in the publication of a comprehensive set of guidelines for researchers